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Even something as small as a cold or allergies can affect Milann’s body
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YouTubeThe_Fitness_Way_to_Cope
This is what a Rett episode looks like. It looks like a seizure, but the EEG never picks it up as one.. These episodes always look different - mild to severe. This one being more severe as she goes limp. Her body loses control, leaving her trapped in there. Almost like a coma😔 It is hard watching your child go through this AND more.. #rettsyndrome #rettepisode #seizure #epilepsy #sadvideo #fuckrettsyndrome #eeg #ditlwithrett #seizuredisorder #raredisorder #rettyforacure #fyp #foryou | Jays Rett
1:02
This is what a Rett episode looks like. It looks like a seizure, but the EEG never picks it up as one.. These episodes always look different - mild to severe. This one being more severe as she goes limp. Her body loses control, leaving her trapped in there. Almost like a coma😔 It is hard watching your child go through this AND more.. #rettsyndrome #rettepisode #seizure #epilepsy #sadvideo #fuckrettsyndrome #eeg #ditlwithrett #seizuredisorder #raredisorder #rettyforacure #fyp #foryou | Jays Rett
13K views9 months ago
FacebookJays Rett Journey
Stopping Seizure Meds for Rett Episodes: A Mom's Journey
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Stopping Seizure Meds for Rett Episodes: A Mom's Journey
810.9K views3 months ago
TikTok_bodiedbybri
This is what a Rett episode looks like. It looks like a seizure, but the EEG never picks it up as one.. These episodes always look different - mild to severe. This one being more severe as she goes limp. Her body loses control, leaving her trapped in there. Almost like a coma😔 It is hard watching your child go through this AND more.. #rettsyndrome #rettepisode #seizure #epilepsy #sadvideo
1:01
This is what a Rett episode looks like. It looks like a seizure, but the EEG never picks it up as one.. These episodes always look different - mild to severe. This one being more severe as she goes limp. Her body loses control, leaving her trapped in there. Almost like a coma😔 It is hard watching your child go through this AND more.. #rettsyndrome #rettepisode #seizure #epilepsy #sadvideo
2.3K views9 months ago
TikTokjays.rett.journey
Horse Therapy Success: Rett Episodes Can't Stop Us
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Horse Therapy Success: Rett Episodes Can't Stop Us
8.7M views7 months ago
TikTok_bodiedbybri
What is Rett Syndrome? ITV Interview Andy Stevenson
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What is Rett Syndrome? ITV Interview Andy Stevenson
72 views1 month ago
YouTubeReverse Rett
Looking back at all the #AdaptiveAdventures Magnolia has gone on with her family and friends, we’ve seen firsthand what happens when we ask, “#WhatIfWeCan?” This series was created to inspire individuals in the Rett community to get out and adventure on their own terms! We’re looking forward to seeing all the things you do while living with Rett 🧳✈️🚵‍♀️⛸️ Not sure where to start? Catch up on all the amazing adventures Magnolia and other families have gone on these past 2 seasons. Watch all the
2:21
Looking back at all the #AdaptiveAdventures Magnolia has gone on with her family and friends, we’ve seen firsthand what happens when we ask, “#WhatIfWeCan?” This series was created to inspire individuals in the Rett community to get out and adventure on their own terms! We’re looking forward to seeing all the things you do while living with Rett 🧳✈️🚵‍♀️⛸️ Not sure where to start? Catch up on all the amazing adventures Magnolia and other families have gone on these past 2 seasons. Watch all the
369 views9 months ago
FacebookRett Revealed
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When a small world holds the biggest battles. Her circle is tiny - Rett, therapy, school, family. One day it will all make sense. One day it will be worth it. #rettsyndrome #love #hope #cure | Rett syndrome
2.2K views9 months ago
FacebookRett syndrome
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"Forming Gene Therapy Consortium" | LTAT Podcast feat. Monica Coenraads
448 views6 months ago
YouTubeRett Syndrome Research Trust
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kkkkkkkkk😂 #humor #shorts
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YouTubeRETT
1:04
Here is another clip from Monica's episode on RareCast Podcast. It's so inspiring to just sit back and recognize what you, the Rett community, have been able to accomplish with grassroots fundraising for RSRT's research initiatives. Without your tenacity and dedication, cures would NOT be on the horizon. Now, more than ever, we need to keep that momentum going to get us to the finish line. | Rett Syndrome Research Trust
578 viewsOct 24, 2024
FacebookRett Syndrome Research Trust
0:17
Dribble Tunnel Races
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YouTubeRett Larson
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Jesus' Return and Billionaires Fleeing to Mars
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💜Rett Episode Moment💜 Walking through how I support my daughter safely and help her come out of the episode. #specialneeds #disability #epilepsy #momsoftiktok #momlife
248.7K views7 months ago
TikTok_bodiedbybri
1:11
We got the EEG off today 💜 In just 2 hours, she had 5 Rett episodes… Hoping this was enough to finally give us some answers. #specialneeds #epilepsy #momlife #rettsyndrome #fyp
96.1K views3 months ago
TikTok_bodiedbybri
0:38
Some days are harder than others. Today she fell off the couch during a Rett episode and I felt so bad seeing her face red. But she used her eye gaze to tell me she was okay, and then she told me what she wanted. I just want her to feel safe and loved. Having a special needs child is not easy, especially when seizures and Rett episodes are involved — falls can happen often, and we’re doing our best every day. #specialneeds #epilepsy #disability #momsoftiktok #fyp
173.6K views6 months ago
TikTok_bodiedbybri
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Mumen Rider's Awakening in One Punch Man Season 3
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TikTokrett.ww
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Sometimes Rett episodes happen before she even gets out of bed. That morning was one of those mornings. And it made me think about something that happened on that Florida trip. When my aunt and I left to get food, she said to me, “You know people can tell something’s wrong with her, right?” I said, “Because of the way she’s been acting?” And she said, “No. The way she looks.” That messed me up. I wasn’t even hungry anymore. As special needs parents, we already carry the weight of knowing the wor
184.5K views5 months ago
TikTok_bodiedbybri
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Short videos

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Even something as small as a cold or allergies can affect Milann’s body
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YouTubeThe_Fitness_Way_to_Cope
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This is what a Rett episode looks like. It looks like a seizure, but the EEG never
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