Children with Rare Disease - Search Videos

Leukodystrophy - Symptoms, Causes, Treatment | NORD

Leukodystrophy - Symptoms, Causes, Treatment | NORD

rarediseases.org

Boy's story sheds light on struggle with rare disease

Boy's story sheds light on struggle with rare disease

6K views · 47 reactions | Today is Rare Disease Day! Did you know children make up half of all patients diagnosed with a rare disease? As of today, more than 7,000 different rare diseases have been identified. With so many patients with rare diseases seen by our doctors and studied by our researchers, every day feels like rare disease day. Read and share these facts to help raise awareness and educate others about rare diseases. | Children's Hospital of Philadelphia | Facebook

6K views · 47 reactions | Today is Rare Disease Day! Did you know c…

2K views1 week ago

FacebookChildren's Hospital of Philadelphia

3.2K views · 55 reactions | Rare disease aren’t as rare as some might think. In fact, there are over 7,000 types of rare diseases – and one in three kids admitted to BC Children’s Hospital has one. Thankfully, researchers on our campus are on a mission to uncover the secrets of rare diseases and help kids live full lives. #RareDiseaseDay #ShowYourRare | BC Children's Hospital Foundation | Facebook

3.2K views · 55 reactions | Rare disease aren’t as rare as some mi…

3.2K views1 week ago

FacebookBC Children's Hospital Foundation

31K views · 351 reactions | It's one of the scarier neurodevelopment...

31K views · 351 reactions | It's one of the scarier neurodevelopment...

31K views2 weeks ago

FacebookUT Southwestern Medical Center

1.8K views · 69 reactions | Spend few minutes to sign up to the #RareDiseaseDay new webinar about ways to introduce rare diseases to young children Listen to our panel of experts and learn effective tips to make children understand rare diseases.  17 February 2022  14:00 CET Register today: https://tinyurl.com/485drj5s | Rare Disease Day | Facebook

1.8K views · 69 reactions | Spend few minutes to sign up to the #Rar…

2K views2 weeks ago

FacebookRare Disease Day

2K views · 27 reactions | For treatment of rare, inherited diseases, this is the time. And our health system is the place. New gene therapies are changing the future of what’s possible for children and adults with diseases like Hurler syndrome, metachromatic leukodystrophy, or adrenoleukodystrophy. Find out how our Rare Disease program is at the forefront of medicine. ➡ https://bit.ly/49TUeax | M Health Fairview Pediatrics | Facebook

2K views · 27 reactions | For treatment of rare, inherited diseas…

2.1K views1 week ago

FacebookM Health Fairview Pediatrics

New rare disease discovered in teen brothers at BC Children’s Hospital

Children with rare genetic disease get world-first treatment to save si…

1.3K views · 21 reactions | Today is Rare Disease Day! Despite the...

348 views3 weeks ago

Only 30 children have been diagnosed with this rare genetic di…

Many parents of kids with rare diseases fight for research — eve…

TODAY.comMeghan Holohan

8.4K views · 140 reactions | Even with rare disease day being cancel…

4.3K views1 week ago

FacebookDr. Tommy Martin

3.6K views · 66 reactions | Did you know there are 6,800 different...

3.6K views2 weeks ago

FacebookLevine Children's

3 of 4 children in family have rare progressive disorder

Only 70 people in the world have this rare gene mutation. Two of th…

ABC NewsMark Hanrahan

8.5K views · 66 reactions | "A rare condition is only part of them,...

3.1K views2 weeks ago

FacebookGlasgow Children's Hospital Charity

For kids with rare genetic disorders, customized CRISPR treatments of…

The Daily Life Of Children Fighting Rare Diseases

3K views2 weeks ago

YouTubeReal Stories

If you had told me when I was in my 20s that I would have not one, but …

3.4K views2 weeks ago

FacebookRarelifemom

Understanding Schwartz-Jampel Syndrome in Children

589.1K views6 months ago

TikTokwonderfullifewithbedford

Science didn't understand my kids' rare disease until I decided to stud…

75.7K viewsJul 18, 2017

Family of toddler with ultra-rare disease sees signs treatment may …

CBS NewsLouisa Moller

10 Things You May Not Know About Rare Diseases

10.3K viewsNov 15, 2019

YouTubeNational Organization for Rare Disorders (NORD)

Rowan's Story

771.9K viewsNov 27, 2018

YouTubeEB Research Partnership

Probability Comparison: Rarest Mental Disorders

3.2M viewsMar 3, 2020

YouTubeWatchData

Customized Treatment For Rare Skin Disease Through Genetics

20.2K viewsOct 15, 2020

YouTubeYale Medicine

Rare Disease Research at NICHD: Niemann-Pick Disease Type C

51.1K viewsFeb 19, 2016

YouTubeNICHDVideos

Rare disorder may explain 11-year-old's sudden odd tics and moodin…

3M viewsJul 21, 2018

YouTubeABC News

6 Common Skin Problems in Children

308.2K viewsMay 13, 2019

YouTubeFirstCry Parenting

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